About a week ago I took an AP Bio test and received a 93% on it, I took it while I was getting IVIG (the IV med that caused my meningitis) and IV Benadryl. So I was incredibly out of it to say the least. My doctors decided to take the test as a group and see if they could score higher than me. Well they ended up getting a 65%, so I felt pretty good. This week we found out the results of my bone marrow cellularity, 65%! Ironic how horrible that number was to them and how great it was for me. I was told that all of my cell lines were there, they were babies, but they were there, So everything should be working great right! I wish that was the case but of course, that's way too easy. Because of the CMV Virus in my system I have to be put on a drug called Valganciclovir until I am able to fly to Washington D.C. and receive a special T-Cell Therapy that will wipe the virus out completely. A side effect of this drug you might ask? Suppressing the bone marrow. My platelets have gone up and above 50,000! It's been a long time since I was above that amount. My white cell count is slowly creeping up too! My red cells haven't budged though and I wish they would because it would be nice to have more energy let alone the appropriate amount of Oxygen. For now I am still in Renucci and it is getting old fast, a small room and no where to go because it is too cold outside and I can't go out into the hospital lobby because there are too many people and I am not allowed to be around that many people. It is hard but I hope that I can return home soon.
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(This is my doctor, Ulrich Duffner. He's German) Imagine the worst migraine you have ever imagined, and then imagine it 10 times worse than that. A medical mystery I always seem to be, it's almost like no one believes me at first, it takes something truly terrible to happen to me in order for something to happen that will stop the problem. This week was migraines, which I was experiencing as an in patient, but not as frequently. This week in renucci I was woken up in the middle of the night with some of the worst pain I've experienced in my life. All week, I took Norco like a mad woman and would run out within two days. They would only give me eight at a time. Eventually the Norco stopped working and I was begging my mom to take me to the ER for IV Dilauded, that's the only thing that I knew of that worked, so she took me and unfortunately at the same time I got there, a horrible trauma accident arrived too, so my migraine wasn't on their top priority list. Eventually I received my drugs and the pain faded as fast as it had come on, and I could smile again. My doctor came to see me and admitted me, so I ended up back in the hospital where I could received IV Dilauded around the clock, but they weren't hardly giving me enough. They ran tests took pictures but nothing looked off with my brain. They tried medications and they failed. I think they thought it was all in my head, or that I wanted pain meds. I always want pain meds, but I wasn't faking it, and I needed them. Then they suggested that it might be a pressure thing, so I got a spinal tap (ouch). Sure enough the spinal tap revealed aseptic meningitis,caused by the medication IVIG. Once they found out I wasn't faking it they sent me home with a script for Dilauded, I didn't even have to ask. They ended up fixing the problem with steroids, one dose of prednisone took my pain from 8 to 0 within a few hours. It was amazing. I still feel good now and I hope that the meningitis is gone, and it never returns. |
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April 2017
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