This week was an exciting one! The first week in months that my ANC was above 500! 904 to be exact! I also engrafted, meaning my ANC was above 500 for three days straight so my donors marrow is officially taking over my empty marrow. This week I left my room for the first time in two months. It's amazing how much change takes places in a small room after being trapped inside of it and how little changes outside. I was pleased to leave my room and see my nurse friends laughing in their usual stations. The other patients walking around the floor that I haven't seen in 60 days. I went outside and tasted the sun. It kissed my head! I am bald so it felt so very good to be able to feel the sun in a new way like that. I wanted to lay in it all day, but because I am on cyclosporine I can't, sun interacts with the drug. This entire process can really drag a person down I feel. I wake up and take about 30 pills for breakfast, as if that isn't a meal itself I have to force myself to eat some form of nutrition so the pills can dissolve safely. It's a trying time. Some days it feels nearly impossible, but when I went outside and felt the sun it reminded me of how free we are to explore. I find hope in that. People were walking around, and the wind was a blessing guiding them where they needed to go whether they knew it or not. I felt hopeful, for the day that I am free to walk around like everyone else and experience life again. Meet new people and see new things, feel different ways and taste different treats. I am in isolation until July 2nd. I can't go into public facilities at high traffic times, I can't go to graduation, I also can't eat out until then. Can't eat fruit that doesn't have a hard peel, can't eat vegetables that aren't cooked. It's a challenge but the reward is so worth it.
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April 2017
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