I moved into the renucci house. It's like an apartment attached to the hospital, and they just finished renovating for transplant patients. They created a small little home for us. Two beds, one bath, a kitchen and a living room. It's much nicer the I expected it to be and I am grateful for that. My mom and I are staying here because I have to go to clinic every day for blood draws and to see my doctor. If we lived closer we would be able to just go home, but my mom doesn't want to drive an hour and 45 minutes twice a day, everyday for multiple weeks. Also there is a rule that you can't live further than 30 minutes from the hospital if you're a bone marrow transplant patient. If something were to happen to you then you need to be able to get to DeVos as fast as possible. I walked downtown, I love the little freedom I have. Anything outside is okay, I don't even have to wear a mask. I just got to explore downtown Grand Rapids and it is a beautiful place. It was a little chilly at first but the sun warmed my head again. I also have realized how reconditioned I have become from this hospital stay. Walking up the hills hurt my legs and tired me out so much we had to take breaks on the way back. My joints have started hurting as well. They brought up physical therapy as an option but I hated that inpatient and I can't imagine I've made a 180 since then. I just want my strength back so I can dance. I want my hunger back so I can enjoy food. I still force myself to eat around my 30 pill meals. I enjoy living here I really do, I just feel like a sick person. Like a hospital sick person.I get horrible headaches during the day and the only thing that takes it away is norco but they don't want me on that for a long time because they don't want my addicted. I wish they were in my position so they could understand.
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April 2017
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