This week I turned 18! Kind of scary because that means I am legally an adult. Being an adult is hard, I watched my mom do it and I have no idea how she manages. Especially since she has me as a child and I have a super rare illness. She has to stay with me, two hours away from my 3 younger siblings. She can't work because she is with me, she needs to still provide for my siblings. She is single. I just can't even imagine how awful that would be. All I got to do that was different from before is sign a piece of paper acknowledging that I am receiving blood products. So much fun.
I also started chemo this week. Fludarabine. This is the first time in my life that the toxic liquid has ever come in contact with my body. You don't feel anything instantly. It takes a while to see side effects I guess. But I felt normal and was excited because it means I am much closer to being healthier. It will be harder to deal with everything once I start to feel the side effects.But everyone reacts to it differently so maybe I won't even react. Wouldn't that be lovely! All I can do now is sit and wait and hope I am lucky. If I'm not, then this is going to be a really bad couple of months to come.
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April 2017
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